HEARTBROTHERS 2022 WEBINAR SERIES
Exploring Topics Affecting the Heart Failure Community
Welcome to HeartBrothers' 2022 Webinar Series—HBF's continuing online events designed to educate the global Heart Failure (HF) patient community regarding a variety of relevant and timely topics. Our 2022 webinars—outlined below—each culminate with a patient Q&A to ensure we meet the needs of our community.
We invite you to scroll down to register for upcoming webinars & watch past webinars.
HEART TRANSPLANTS & MOTHERHOOD
Hope for Women Struggling with Heart Failure
Female HF patients share their personal stories of overcoming the challenges of Heart Failure and Heart Transplant while persevering in their role as mothers.
Originally broadcast January 20, 2022
Amanda Vest, Tufts Medical Center
MINORITY COMMUNITIES & HF
Explore Their Unique Heart Failure & Transplant Journeys
The HF journey in minority communities is arduous. Patients of color share their unique perspective and challenges overcome on their road to transplant.
Originally broadcast February 17, 2022
Larry Williams & Kyree Miller
Joy Donohue, Team HeartBrothers Advisor
I Wish I Had Known...
Presented by CareDX, this special webinar invites heart, lung, and kidney transplant patients to share what they wish they had known prior to transplant.
Originally broadcast March 31, 2022
What Is HCM & How Does It Impact Multiple Generations?
World-renowned, Boston-based HCM specialist, Dr. Martin Maron, explores this silent killer, how it affects HF patients, hereditary risk, prevalence, & outcomes.
Originally broadcast April 21, 2022
Linda Ordway, MSN, NP, Tufts Medical Center
Karen Klimczak, HCM Patient & Heart Transplant Survivor
Tom Bull, HCM Patient & Heart Transplant Survivor
Darlene Goodwin, HCM Patient & Heart Transplant Survivor
Timothy Goodwin, HCM Patient
THE CAREGIVER PERSPECTIVE
On the Heart Failure & Heart Transplant Journey
An emotional discussion exploring caregivers' unique challenges in supporting Heart Failure patients on their arduous journey to heart transplant and beyond.
To be broadcast Thursday, May 19, 2022
Leslie Sullivan, Susan Romer, Ellie Mahdavy, Molly Bull
Christian Jeeves, Caregiver
Spring 2021 Webinar Series
We know how difficult it is to navigate heart failure during this challenging time. We hope you’ll join us as we endeavor into further discussion on important topics affecting the Heart Failure community in today’s world.
Webinar 1: The COVID-19 Vaccine: Information for Heart Transplant Patients
Did you miss our first webinar (Wed, Apr 14) with Tufts Medical Center and Massachusetts General Hospital? Not to worry! Click the button below to register and get immediate access to the video recording.
Webinar 2: The Organ Care System (OCS) & How It Will Affect Heart Transplant Patients
Did you miss our second webinar (Wed, May 5) with our friends from New England Donor Services and Transmedics? Not to worry! Click the button below to register and get immediate access to the video recording.
Webinar 3: Long-Term Survival with Heart Transplant Patients
Did you miss our third webinar (Wed, June 2) with Tufts Medical Center? Not to worry! Click the button below to register and get immediate access to the video recording.
We discussed the following topics as they relate to the specific needs of Heart Failure (HF), LVAD, & Transplant Patients:
Explore co-morbidities developed from immunosuppression
Side effects of transplants
Topics to be discussed include cancer, cataracts, cardiac allograft vasculopathy
Risk of organ rejection
The discussion focused on post-transplant survival rates, particularly beyond the first few years. Questions included…What happens to patients once they move past the first few years of living with their new heart? What are the survival rates, maladies, and causes of death as time marches on? What research and developments are being done to address these causes and to extend the average life of a heart transplant patient?
Webinar 4: HeartBrothers House
Did you miss our fourth webinar (Wed, August 11)? Not to worry! Click the button below to register and get immediate access to the video recording.
Would you like to join future webinars? Let us know your name and email address to get specifics as future events are solidified.